Big Day, Bigger News

Today was a tough day and I am exhausted. Jaxon had a lot going on. First this morning, he had a blood test to check his hemaglobin levels. They have been low and the doctors have been discussing a blood transfusion. Unfortunately, the test came back low again today, so it was decided to give him the blood. I really didn't want to this but it seems it is for the best. It just weirds me out, even though I had 4 units of blood when I was in the hospital. I just didn't want Jaxon to have to go through that. But he does look better, his fingers are pink again and his cheeks are rosey. His temperature was up to, it had been low at 97 early this morning.

During his transfusion, he also met with his physical therapist. She worked with him and put him into several different positions. She thinks he is a bit high toned, meaning his muscles stiffen up and want to stretch out all the time. So once he gets home, he will need to do his exercise to loosen up.

Immediately following the transfusion, the neonatal opthamologist, came in to do a second exam on his eyes. She wants to make sure they are developing as they should be. He is a bit immature, which is to be expected, considering he is a preemie. He has to go visit her office in a couple weeks to track his progress. He'll visit her off and on, until his eyes are completely developed.

Then, at the end of the day, he was put on a new monitor system to track any apnea spells he has. This new monitor will be able to determine if his spells are life threatening and if he'll need a monitor once he gets home. It is a great tool, but it was very annoying and kept going off every few minutes when he was eating. It shreaks very loudly.

Ok, so the Bigger news is that, his Neonatologist said he may be coming home, Sunday night or Monday morning. I am very excited and can't wait to be done with the hospital scene. However, it is a bit emotional. It seems strange to think of having Jaxon all on our own. For the past 45 days, we have had assistance with him 24/7. And these nurses have been like angels to us. They care so delicately for Jaxon, as if he were their own son or grandchild. I have to admit that I am a little sad to leave them. These ladies are so special and caring. They have eached helped me to get to know my son and to learn how to care for him. Somedays, I feel that I would not have made it through this whole experience if it weren't for their encouragement. I will always remember their strength, love, and compassion. On the other hand, I am ready to bring my baby home and be the one to make the decisions regarding his care and to be able to hold and kiss him whenever I want. Even though I appreciate all of their help and wisdom, it can sometimes be hard to think of Jaxon has MY son, with everyone else telling me how to handle him. Anyway, I got off on a little tangent, but I am very excited that he will be coming home soon. We have officially began the count down.