I am sooo sorry for keeping you all on pins and needles. I know it's been a week since my last post, but I have been staying busy getting ready for Jax' homecoming. Unfortunately, he is still in the NICU. Since last Thursday, we've had a couple of false homecoming dates.
After his event recording (72 hour monitoring) Dr. Prazad noticed that he had two somewhat severe Apnea episodes (not breathing for 20+ seconds). So she recommended he stay for a few more days. She also restarted him on caffeine and started him on reglin (a medication to strengthen the flap from his esophagus to his stomach). She also noticed that these episodes are related to feedings and spitting up. Needless to say, we didn't get to bring him home at the start of the week, but we did have home monitor training for the monitor he will be coming home on.
Next, we were waiting to see how he reacted to the new medication and caffeine. He did great and had no Apnea episodes. So yesterday, Dr Paidisetty said Jaxon could come home Thursday or Friday, as long as, he had a good night, Apnea free. Well, I called this morning to see what time we should come pick him up and I was told he had a few Apnea episodes during and after feedings last night. Again, we could not bring him home. Dr Paidisetty, told Dr Stich that he would have to tell us Jaxon wasn't coming home; he didn't want to have to be the bearer of bad news again.
Now we continue to wait. Dr Stich took him off the formula supplement, they had added to his breastmilk. He thinks Jax doesn't like it and it's making him feel
upset and gasy. Which make him spit up and fussy. If he does well without the formula addition, he will go on calcium additive prescripition.
Please pray that he will be able to come home soon and that he will be 100% ready.
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